National Autopsy Registry

About NAREG

The National Autopsy Registry NAREG emerged from the German Registry for COVID-19 Autopsies (DeRegCOVID), which was founded in April 2020 to centrally collect information on autopsies of COVID-19 patients. It has contributed significantly to the understanding of the disease and has been recommended by international experts as a model structure for Europe and the world.

DOCUMENTATION

The central documentation of all autopsies should facilitate autopsy-driven research. An autopsy registry enables access to disease-, organ- or trauma-specific data and biosamples, which is particularly important for new or rare diseases.

SUPPORT

Structured, annotated and curated data of autopsied deceased persons are available in NAREG. This data can be provided by the individual centers for other studies. The registry thus acts as an intermediary between autopsy centers and researchers.

USAGE

The registry promotes interdisciplinary cooperation and inclusion of pathology, neuropathology and forensic medicine in Germany. Established communication channels enable the rapid dissemination of information and data within the network.

Current status

The register is not yet live. A positive ethics vote has already been received, but final approval by the data protection authorities is still pending. As soon as this has been granted, the relevant information and documents will be published here.

Registry team Aachen

Prof. Dr. Peter Boor, Ph. D.

Head of registry

pboor@ukaachen.de

Dr. Saskia von Stillfried

Deputy head of registry

svonstillfri@ukaachen.de

Prof. Dr. Rainer Röhrig

Data management and technical direction

rroehrig@ukaachen.de

Svenja Windeck

Project management

svwindeck@ukaachen.de

Dustin Thewes

Technical project management

dthewes@ukaachen.de

Dr. Anna Katharina Kuderna

Project management

akuderna@ukaachen.de